We had Dylan’s cardiologist appointment today with Mr Money (no his name isnt REALLY Mr Money but he is the doctor whose exorbitant bills arent covered fully by our health insurance basically because he overcharges). Anyway…it went great. He had an echo and electrocardiogram done and the doctor was really happy with both tests. He said we should treat him as a normal child and that his surgery was 100% successful. His VSD (hole in the heart) has completely closed and his aorta is wide open so the risk of the coarctation reoccurring is minimal. It usually happens within the first year but so far so good. He still needs follow up visits to check on his bicuspid valve but for now it functions as it should and we dont need to worry about it. His next visit will be in 1-2 years. Thank Goodness because it cost us $600 today and we are really sick and tired of all these medical bills.
There was another story about the cemetery (where Alex is buried) on the news last night. This time the cemetery management were interviewed because apparently there are rules about what can be left at the childrens graves and anything exceeding a certain height or items of glass or things that can rust are removed by the cemetery staff. I think that they are just covering up for the fact that their lack of surveillence of the area has led to vandalism and theft. The items stolen from that couple were not anything out of the ordinary and certainly didnt breach any ‘rules’. They again ineterviewed parents and they were upset that they werent told when items were removed from their childrens graves even if it was by the cemetery staff. The news article which appeared in ‘The Age’ newspaper listed a phone number for other parents who had things stolen so we called them and even if it felt petty to be complaining about stolen windmills and flowers we hope that if enough people phoned that they would do something about security in the area. Its bad enough having to celebrate Christmas without your child but when you pick out certain things to place on your childs grave the last thing you would expect is someone to be so heartless to steal them or even to remove them without telling you why.
Dylan is really getting good at sitting by himself now. We can now leave him sitting without worrying that he will fall. This is a photo of him sitting in my office chair (of course I know he can fall from the chair..Im not that stupid!)
and on the couch….already trying to take over the remote control.
