Its exactly one year ago today that we found out about Dylan’s heart condition. Some people say that the number 13 is an unlucky number and it has definitely proved to be for us. We also found out on 13th October 2005 about Alex’s CDH so we try not to schedule any doctors appointments or check-ups on the 13th anymore. 13th October 2005 and 13th November 2006 are days I will never forget. I cant begin to explain the feeling of being told that your unborn child has a birth defect and that he may or may not survive. My world collapsed. If I had to pick the worst days of my life those two days would be it.
I have read on the internet that by 8 months old 90% of babies can sit unsupported. Although Dylan can sit for a few minutes in front of his toys he still falls over if we arent there to catch him so strictly speaking he isnt sitting unsupported. With everything I am hearing lately about different developmental delays in children I am starting to worry that Dylan may not be up to speed with his milestones. Apparently he should be crawling but he isnt doing that either. Should I be worried yet ? We see the maternal health nurse at the end of the month and I know she is going to say something about it. I sometimes wonder if the month he spent in hospital when he was born (virtually on life support) has slowed him down a little. We are being assessed by the Royal Childrens hospital in a research project they are conducting on developmental delays in children undergoing heart surgery in the first few weeks of life. Dylan has already had one assessment and will be having another towards the end of the year so I guess the next assessment will tell me more.
I think my little monster has woken up because I can hear him blowing raspberries in his cot. Just another lovely habit he has picked up in the last week…..



